Parents of teenager with severe epilepsy call for easier access to medical cannabis prescriptions
Craig Williams and Rachel Rankmore created their plea in episode of Countryfile Diaries where they spoke about their son, Bailey, along with his cannabis-based therapy.
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Bailey, 17, has Lennox-Gastaut syndrome, a more serious form of epilepsy that is hard to treat and may see him encounter around 100 seizures a day.
Personal prescription
His family ran from traditional treatment choices so decided to try out cannabidiol, in the kind of CBD petroleum , via a personal prescription when Bailey was 14.
“He would have a minimum of 100 significant seizures (per day) those who associate with vibration on the ground,” they informed the programme.
“We have seen him in bed, lying there, totally dead, and we agreed we have got nothing to lose”
They discovered CBD oil had a calming effect when Bailey had a seizure, and reduced their frequency, permitting him to get involved in actions that would otherwise have been challenging.
Medicinal cannabis is currently legally available in the UK but as Bailey’s parents are not able to acquire an NHS prescription that they import the oil in the Netherlands, a procedure they say is pricey.
“From the time that jar of oil arrives to our drugstore, that jar of petroleum becomes 500 and he moves through three bottles of oil per week.”
Physicians have been reluctant to prescribe cannabis-based medications in the united kingdom because a change in the legislation last November due to the absence of clinical trial evidence of its benefits and security.
Further study
Parents of kids who have severe epilepsy were abandoned dismayed in August as soon as the body which urges NHS spending diminished to back medical cannabis therapy for kids on the healthcare .
“We consistently act in the best interests of individuals and place patients at the centre of what we do,” they stated.
“We’ve been in contact Bailey and his loved ones and also have met together to talk about pathway and treatment choices and we’ve discussed the concerns that the family have increased regarding the management of their ailment.
“We will keep working together with the household to best handle his condition later on.”